Welcome to the Sentido Community
"It takes a lot of patience. Seizures are overwhelming in the beginning but it will get better. There are people and information that can help. It may not be the right answer but it’s an answer. I have learned it is ok to cry. Parents try to be strong but seizures will break you but there are support groups so don’t be afraid to ask." — Jennifer Ostrom, Kailey’s Mother
"Paul Grafa is a 6-year-old, fun-loving boy who is diagnosed with Down syndrome. Paul likes to play any sport, dance, sing and play the drums. Paul had to overcome the challenge of feeding without having to use a G-Tube. “ — Alma Acosta, Paul’s Mother
"Cruz is two and his smile will light up any room. Cruz loves to give kisses, ride his golf cart, and play in water. We all love Cruz just the way he is!" — Crystal Crawford, Cruz’ Mother
"My name is Santiago, but go by Santi. I am Non-verbal autistic. I love giving hugs and kisses to those I love. I enjoy playing with trucks of all sizes and tools. If I could be outside, getting dirty and climbing the tallest thing I would be the happiest. My favorite thing to do is listen to music and dance!" — Santiago Munoz
"Both have been successful in speech & occupational therapy. They enjoy extra curricular activities such as baseball, gymnastics and swimming lessons. They enjoy outings such as parks, the zoo, museums, etc." — Janet Ruiz
"My Name is Xavier !! I’m 7 years old. I love my parents, my little sister and my dog Oliver very much, i love airplanes, music, dancing, and trains and food. Autism is part of me but is not Me... I am so much more than a diagnosis.” — Xavier
"My name is Jaxton and I'm 4 yrs old. I have level 3 ASD non-verbal, but I am have made great strides over the past few months. I have taught myself, with the help of my table and my moms reputation, to count to 100, my ABC, shapes, colors and people around me. Also I am quite a mimic.” — Jaxton Estrada
"At first, the G-tube was a way to keep me growing and gaining weight. Now we also know I aspirate on all liquids and some foods, so I get my daily hydration/nutrition through my little button. My G-tube keeps me fed, safely.” — Camden Larson
"I wasn’t diagnosed until 13 years old. They did genetic testing because I was having pancreatitis without any available reason. We were all shocked. Nobody in my family was expecting this. I have been through a lot in the past 5 years. As a result of my CF I am now living without my pancreas! I had the TPIAT procedure to completely remove my pancreas. My fight has not been easy, but I do everything I can to be strong and raise awareness for Cystic Fibrosis! We are all in this fight together!” — Jenna M.
" Hi! I’m Aiden. I’m 2 years old & was diagnosed with CF at 12 days old after abnormal findings on my newborn screening. A sweat test confirmed I did indeed have CF & from there I would start all my needed medications to keep me healthy. I really struggled to gain weight for 16 months of my life before I got a g-tube to help add in extra calories!” — Aiden H.
